I went to grab a piece of paper and randomly read this page from my journal, describing a hospital stay after my first son had a stroke:
We just finished capturing Sam’s seizure activity on video tape. We heard some bad news last night. The neurologist is leaning towards a diagnosis of infantile spasms, which is a bad form of epilepsy. We still don’t really know anything yet. I feel positive about the future. I don’t know why; I just do. When I came back into the room last night, Lisa was crying so much her shirt was wet with tears. I knew I was in for bad news, so I think I went into survival mode. Lisa was on the phone with her mother I think. My mom was there too, doing what she always does in crisis situations: remaining calm. She told me what Dr. Schwartz had said. I nodded and absorbed it, feeling strangely detached. I hugged Lisa, told her everything would be fine and said we had to stay strong for Sam. She said that’s what her mom said. She calmed down, held Sam, and started playing with him and talking to him. That’s when I lost it. I sat at the table with a glass of beer I’d smuggled in and buried my head in my arms and cried. I cried so hard I had to go into the bathroom and shut the door. I sat in the door of the shower and begged God not to take my son. I apologized for everything, for laughing at things I realized just weren’t funny. I asked Him to take me instead of Sam if he had to. I think the only time I’ve felt a depth of sadness close to that was when we first learned he’d had a stroke.
Please God, Thy will be Done
Preserve my Son’s Health
Let us Raise him Happy, Healthy
Strong and Smart.
Amen.
That’s enough journaling for now.